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If you’re just joining us, you’re probably wondering: what exactly is ALS?
We hope you’ll help us raise awareness about this disease by sharing this post! Take action to end ALS today at iamals.org/progress.

If you’re just joining us, you’re probably wondering: what exactly is ALS?
We hope you’ll help us raise awareness about this disease by sharing this post! Take action to end ALS today at iamals.org/progress.

If you’re just joining us, you’re probably wondering: what exactly is ALS?
We hope you’ll help us raise awareness about this disease by sharing this post! Take action to end ALS today at iamals.org/progress.

If you’re just joining us, you’re probably wondering: what exactly is ALS?
We hope you’ll help us raise awareness about this disease by sharing this post! Take action to end ALS today at iamals.org/progress.

If you’re just joining us, you’re probably wondering: what exactly is ALS?
We hope you’ll help us raise awareness about this disease by sharing this post! Take action to end ALS today at iamals.org/progress.

If you’re just joining us, you’re probably wondering: what exactly is ALS?
We hope you’ll help us raise awareness about this disease by sharing this post! Take action to end ALS today at iamals.org/progress.

ALS steals too much — but it will NEVER steal our determination, our urgency, or our drive. 💙

This community keeps showing up.
For research.
For access.
For awareness.
For each other.

✨ Volunteer
📣 Advocate
💙 Donate
⚡ Take action

Get in, we’re ending ALS.

🔗 bit.ly/ALS-next

We are heartbroken by the passing of our friend @realericdane—a fierce advocate, a generous spirit, and a true champion in the movement to end ALS.

Eric used his platform not for attention, but for action. From the moment he joined I AM ALS, he showed up with courage and conviction, asking how he could use his superpowers to help the movement grow. It was an honor to brainstorm with him, to walk alongside him in the halls of Congress on behalf of our community, amplify the urgent need for ACT for ALS and research funding, and drive toward treatments and, ultimately, a cure. He understood that ALS is not just a diagnosis; it is a call to action for families, for answers, and for change.

Eric brought humility, humor, and visibility to ALS and reminded the world that progress is possible when we refuse to remain silent. Eric was more than a supporter of our mission—he was part of our family. His impact will live on in the research being funded, the policies being advanced, and the community he helped grow by his honesty, his bravery, and his belief in a better future for anyone struggling with this diagnosis.

We honor Eric by continuing the work he believed in so deeply: mobilizing communities, driving critical research, securing essential funding, and fighting relentlessly for real solutions.

Our thoughts are with his loved ones and our entire community. I AM ALS will carry his legacy forward—until ALS is no more.

Lou Gehrig Day is coming! Will you be joining us for a Major League Baseball game this summer? Find your local game and learn more: bit.ly/lgd-26

Lou Gehrig Day is coming! Will you be joining us for a Major League Baseball game this summer? Find your local game and learn more: bit.ly/lgd-26

Lou Gehrig Day is coming! Will you be joining us for a Major League Baseball game this summer? Find your local game and learn more: bit.ly/lgd-26

‘I AM ALS’ announces a new public service announcement to help raise awareness during #ALSAwarenessMonth featuring the late Eric Dane with former #GreysAnatomy co-stars and other celebrities.

‘I AM ALS’ announces a new public service announcement to help raise awareness during #ALSAwarenessMonth featuring the late Eric Dane with former #GreysAnatomy co-stars and other celebrities.

‘I AM ALS’ announces a new public service announcement to help raise awareness during #ALSAwarenessMonth featuring the late Eric Dane with former #GreysAnatomy co-stars and other celebrities.

‘I AM ALS’ announces a new public service announcement to help raise awareness during #ALSAwarenessMonth featuring the late Eric Dane with former #GreysAnatomy co-stars and other celebrities.

‘I AM ALS’ announces a new public service announcement to help raise awareness during #ALSAwarenessMonth featuring the late Eric Dane with former #GreysAnatomy co-stars and other celebrities.

‘I AM ALS’ announces a new public service announcement to help raise awareness during #ALSAwarenessMonth featuring the late Eric Dane with former #GreysAnatomy co-stars and other celebrities.

‘I AM ALS’ announces a new public service announcement to help raise awareness during #ALSAwarenessMonth featuring the late Eric Dane with former #GreysAnatomy co-stars and other celebrities.

‘I AM ALS’ announces a new public service announcement to help raise awareness during #ALSAwarenessMonth featuring the late Eric Dane with former #GreysAnatomy co-stars and other celebrities.

‘I AM ALS’ announces a new public service announcement to help raise awareness during #ALSAwarenessMonth featuring the late Eric Dane with former #GreysAnatomy co-stars and other celebrities.

‘I AM ALS’ announces a new public service announcement to help raise awareness during #ALSAwarenessMonth featuring the late Eric Dane with former #GreysAnatomy co-stars and other celebrities.

‘I AM ALS’ announces a new public service announcement to help raise awareness during #ALSAwarenessMonth featuring the late Eric Dane with former #GreysAnatomy co-stars and other celebrities.

‘I AM ALS’ announces a new public service announcement to help raise awareness during #ALSAwarenessMonth featuring the late Eric Dane with former #GreysAnatomy co-stars and other celebrities.

💙 COME AS YOU ARE 💙

Join us for a community-led conversation about volunteering with the I AM ALS community.

We’ll chat about:
✨ Our favorite ways to get involved
💬 What volunteering has meant to us
🤝 How you can join the movement
❓ Your questions about volunteering

Whether you’re new here or already involved, there’s a place for you in this community 💙

🔗 Sign up: bit.ly/comeasyou

⚾👕 OUR LOU GEHRIG DAY TEES ARE GOING FAST 👕⚾

Don’t miss your chance to grab this year’s Lou Gehrig Day T-shirt before they sell out!

Order TODAY so it arrives in time for Lou Gehrig Day 💙

🛒 bit.ly/LGDtee

⚾ ONLY 2 WEEKS UNTIL LOU GEHRIG DAY ⚾

Join us at a game near you to:

💙 Raise ALS awareness
🤝 Build meaningful community connections
⚾ Celebrate and have fun together at the ballpark

We can’t wait to see this community show up strong and LOUD across the country.

🎟 Find your game: bit.ly/lgd-26

⚾ ONLY 2 WEEKS UNTIL LOU GEHRIG DAY ⚾

Join us at a game near you to:

💙 Raise ALS awareness
🤝 Build meaningful community connections
⚾ Celebrate and have fun together at the ballpark

We can’t wait to see this community show up strong and LOUD across the country.

🎟 Find your game: bit.ly/lgd-26

🚨 BIG ADVOCACY WIN 🚨

The ACT for ALS just reached 60 cosponsors this week! 🎉

We said it before, and we’ll say it again — our advocacy works. 💪

Every email sent, every call made, every story shared is helping move this legislation forward.

Now let’s keep the pressure on to secure historic ALS research funding and expand access to potential therapies for the ALS community.

🔥 Help us get this across the finish line: bit.ly/fundALS

"This flag is a way to honor my mom. It means we keep saying her name. It means I don’t leave the ALS community. It means I find my bravery, climb the grief mountain, and hold myself accountable. ⁣
⁣
Knowing a stranger in D.C. might read my mom's name means she remains, in some ways, and we continue to heal."
- Stacie Winslow, lost her mother to ALS

"This flag is a way to honor my mom. It means we keep saying her name. It means I don’t leave the ALS community. It means I find my bravery, climb the grief mountain, and hold myself accountable. ⁣
⁣
Knowing a stranger in D.C. might read my mom's name means she remains, in some ways, and we continue to heal."
- Stacie Winslow, lost her mother to ALS

"This flag is a way to honor my mom. It means we keep saying her name. It means I don’t leave the ALS community. It means I find my bravery, climb the grief mountain, and hold myself accountable. ⁣
⁣
Knowing a stranger in D.C. might read my mom's name means she remains, in some ways, and we continue to heal."
- Stacie Winslow, lost her mother to ALS

Thank you @fox5dc, @nbc10boston, WCAX, ABC, and CBS for helping share our community’s stories 💙

Every story shared helps people living with ALS and families impacted by ALS feel less alone — and brings more advocates into this movement.

In gratitude,
I AM ALS

So lovely connecting with our friends from @hopelovescompany at the Gathering last week 💙

Grateful for partners and community leaders across the ALS community who continue to lead with compassion, urgency, and shared purpose.

So lovely connecting with our friends from @hopelovescompany at the Gathering last week 💙

Grateful for partners and community leaders across the ALS community who continue to lead with compassion, urgency, and shared purpose.

So lovely connecting with our friends from @hopelovescompany at the Gathering last week 💙

Grateful for partners and community leaders across the ALS community who continue to lead with compassion, urgency, and shared purpose.