인스타그램 스토리 뷰어

DAY 15 - als.org/accelerate
Let’s find a cure people. No fees necessary!
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Anyone know @fallontonight ?! Can we get some more eyes on this disease? Do we really need another ice bucket challenge?? CLAM CHOWDAH challenge perhaps?
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Everything’s so fun and cute isn’t it
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#alsawareness
#fuckals
#share

Downtown Detroit glows red in support of ALS Awareness Month through May 16 ❤️

In recognition of ALS Awareness Month, the Downtown Detroit Partnership partnered with @als to raise awareness for ALS, kicking off a weeklong tribute across Downtown Detroit alongside @BeaconParkDetroit, @BedrockDetroit, @DetPeopleMover, and @fordfield.

This past Sunday, the Downtown Detroit Partnership hosted families impacted by ALS, community leaders, and supporters at Campus Martius Park. One of the most powerful moments of the evening: families gathered under the red lights to spell out “END ALS” — a message of hope, urgency, and solidarity for those impacted by ALS.

Thank you to #alsassociation and everyone who showed up, wore red, and helped shine a light on the fight to end ALS.

#ENDALS | #ALSAwarenessMonth | #DowntownDetroit | #DowntownDET

Downtown Detroit glows red in support of ALS Awareness Month through May 16 ❤️

In recognition of ALS Awareness Month, the Downtown Detroit Partnership partnered with @als to raise awareness for ALS, kicking off a weeklong tribute across Downtown Detroit alongside @BeaconParkDetroit, @BedrockDetroit, @DetPeopleMover, and @fordfield.

This past Sunday, the Downtown Detroit Partnership hosted families impacted by ALS, community leaders, and supporters at Campus Martius Park. One of the most powerful moments of the evening: families gathered under the red lights to spell out “END ALS” — a message of hope, urgency, and solidarity for those impacted by ALS.

Thank you to #alsassociation and everyone who showed up, wore red, and helped shine a light on the fight to end ALS.

#ENDALS | #ALSAwarenessMonth | #DowntownDetroit | #DowntownDET

Downtown Detroit glows red in support of ALS Awareness Month through May 16 ❤️

In recognition of ALS Awareness Month, the Downtown Detroit Partnership partnered with @als to raise awareness for ALS, kicking off a weeklong tribute across Downtown Detroit alongside @BeaconParkDetroit, @BedrockDetroit, @DetPeopleMover, and @fordfield.

This past Sunday, the Downtown Detroit Partnership hosted families impacted by ALS, community leaders, and supporters at Campus Martius Park. One of the most powerful moments of the evening: families gathered under the red lights to spell out “END ALS” — a message of hope, urgency, and solidarity for those impacted by ALS.

Thank you to #alsassociation and everyone who showed up, wore red, and helped shine a light on the fight to end ALS.

#ENDALS | #ALSAwarenessMonth | #DowntownDetroit | #DowntownDET

Downtown Detroit glows red in support of ALS Awareness Month through May 16 ❤️

In recognition of ALS Awareness Month, the Downtown Detroit Partnership partnered with @als to raise awareness for ALS, kicking off a weeklong tribute across Downtown Detroit alongside @BeaconParkDetroit, @BedrockDetroit, @DetPeopleMover, and @fordfield.

This past Sunday, the Downtown Detroit Partnership hosted families impacted by ALS, community leaders, and supporters at Campus Martius Park. One of the most powerful moments of the evening: families gathered under the red lights to spell out “END ALS” — a message of hope, urgency, and solidarity for those impacted by ALS.

Thank you to #alsassociation and everyone who showed up, wore red, and helped shine a light on the fight to end ALS.

#ENDALS | #ALSAwarenessMonth | #DowntownDetroit | #DowntownDET

Downtown Detroit glows red in support of ALS Awareness Month through May 16 ❤️

In recognition of ALS Awareness Month, the Downtown Detroit Partnership partnered with @als to raise awareness for ALS, kicking off a weeklong tribute across Downtown Detroit alongside @BeaconParkDetroit, @BedrockDetroit, @DetPeopleMover, and @fordfield.

This past Sunday, the Downtown Detroit Partnership hosted families impacted by ALS, community leaders, and supporters at Campus Martius Park. One of the most powerful moments of the evening: families gathered under the red lights to spell out “END ALS” — a message of hope, urgency, and solidarity for those impacted by ALS.

Thank you to #alsassociation and everyone who showed up, wore red, and helped shine a light on the fight to end ALS.

#ENDALS | #ALSAwarenessMonth | #DowntownDetroit | #DowntownDET

“Hi everyone! My name is Judge, and I proudly serve with the Jacksonville Police Department as a police horse! I was named after Assistant Sheriff Jimmy Judge who passed away from ALS in 2023. A few days ago, I had the great opportunity to attend the Walk to Defeat ALS Jacksonville. At the walk, I got to meet other four-legged friends who told me about how their person has been impacted by the disease. ALS is a tough disease and it takes all of us, even us furry folk, to create a world without ALS.” - Judge the Horse

All are welcome at the Walk to Defeat ALS find a walk near you by visiting the link in our bio!

#WalktoDefeatALS #Horses #Pets #ALS #JacksonvilleFlorida

“Hi everyone! My name is Judge, and I proudly serve with the Jacksonville Police Department as a police horse! I was named after Assistant Sheriff Jimmy Judge who passed away from ALS in 2023. A few days ago, I had the great opportunity to attend the Walk to Defeat ALS Jacksonville. At the walk, I got to meet other four-legged friends who told me about how their person has been impacted by the disease. ALS is a tough disease and it takes all of us, even us furry folk, to create a world without ALS.” - Judge the Horse

All are welcome at the Walk to Defeat ALS find a walk near you by visiting the link in our bio!

#WalktoDefeatALS #Horses #Pets #ALS #JacksonvilleFlorida

“Hi everyone! My name is Judge, and I proudly serve with the Jacksonville Police Department as a police horse! I was named after Assistant Sheriff Jimmy Judge who passed away from ALS in 2023. A few days ago, I had the great opportunity to attend the Walk to Defeat ALS Jacksonville. At the walk, I got to meet other four-legged friends who told me about how their person has been impacted by the disease. ALS is a tough disease and it takes all of us, even us furry folk, to create a world without ALS.” - Judge the Horse

All are welcome at the Walk to Defeat ALS find a walk near you by visiting the link in our bio!

#WalktoDefeatALS #Horses #Pets #ALS #JacksonvilleFlorida

“Hi everyone! My name is Judge, and I proudly serve with the Jacksonville Police Department as a police horse! I was named after Assistant Sheriff Jimmy Judge who passed away from ALS in 2023. A few days ago, I had the great opportunity to attend the Walk to Defeat ALS Jacksonville. At the walk, I got to meet other four-legged friends who told me about how their person has been impacted by the disease. ALS is a tough disease and it takes all of us, even us furry folk, to create a world without ALS.” - Judge the Horse

All are welcome at the Walk to Defeat ALS find a walk near you by visiting the link in our bio!

#WalktoDefeatALS #Horses #Pets #ALS #JacksonvilleFlorida

Did not get it in under 70 seconds but all the websites are below. You can’t make them clickable here, so yes take an extra 15 seconds to copy/paste per favore grazieeee🙏🏼💜

1.als.org

2.als.net

3.ccals.org

4.petefrates.com

5.massgeneral.org/neurology/als

6.everythingals.org

7.heralsstory.org

CHECK ‘EM OUT~!

Thanks for watching
💜

Last week, our Michigan advocates brought their voices — and their dancing shoes — to the State Capitol in Lansing.

Throughout the day, they met with lawmakers including Rep. Wozniack, Rep. Price, Rep. Green, Senator Santana, Senator Singh, and the Chief of Staff to the House Speaker, sharing their personal stories and making the case for continued support for ALS care services. Each conversation was a powerful reminder of why supporting ALS research and care is so critical.

But the moment that said it all? Mary, an ALS caregiver, and Tressa, living with ALS, started a dance party right there in the Capitol — something they do at every doctor’s appointment. It drew a crowd, earned them a gentle scolding from the Sergeant at Arms, and perfectly captured everything that makes this community extraordinary: passionate, joyful, and impossible to ignore.

Thank you to every advocate who showed up and showed out in Lansing. Even if you aren’t much of a dancer you can make a difference in your state by becoming an ALS advocate. Visit the link in our bio to learn more.

#ALS #dancing #michigan #advocating #lansing

Last week, our Michigan advocates brought their voices — and their dancing shoes — to the State Capitol in Lansing.

Throughout the day, they met with lawmakers including Rep. Wozniack, Rep. Price, Rep. Green, Senator Santana, Senator Singh, and the Chief of Staff to the House Speaker, sharing their personal stories and making the case for continued support for ALS care services. Each conversation was a powerful reminder of why supporting ALS research and care is so critical.

But the moment that said it all? Mary, an ALS caregiver, and Tressa, living with ALS, started a dance party right there in the Capitol — something they do at every doctor’s appointment. It drew a crowd, earned them a gentle scolding from the Sergeant at Arms, and perfectly captured everything that makes this community extraordinary: passionate, joyful, and impossible to ignore.

Thank you to every advocate who showed up and showed out in Lansing. Even if you aren’t much of a dancer you can make a difference in your state by becoming an ALS advocate. Visit the link in our bio to learn more.

#ALS #dancing #michigan #advocating #lansing

Last week, our Michigan advocates brought their voices — and their dancing shoes — to the State Capitol in Lansing.

Throughout the day, they met with lawmakers including Rep. Wozniack, Rep. Price, Rep. Green, Senator Santana, Senator Singh, and the Chief of Staff to the House Speaker, sharing their personal stories and making the case for continued support for ALS care services. Each conversation was a powerful reminder of why supporting ALS research and care is so critical.

But the moment that said it all? Mary, an ALS caregiver, and Tressa, living with ALS, started a dance party right there in the Capitol — something they do at every doctor’s appointment. It drew a crowd, earned them a gentle scolding from the Sergeant at Arms, and perfectly captured everything that makes this community extraordinary: passionate, joyful, and impossible to ignore.

Thank you to every advocate who showed up and showed out in Lansing. Even if you aren’t much of a dancer you can make a difference in your state by becoming an ALS advocate. Visit the link in our bio to learn more.

#ALS #dancing #michigan #advocating #lansing

Last week, our Michigan advocates brought their voices — and their dancing shoes — to the State Capitol in Lansing.

Throughout the day, they met with lawmakers including Rep. Wozniack, Rep. Price, Rep. Green, Senator Santana, Senator Singh, and the Chief of Staff to the House Speaker, sharing their personal stories and making the case for continued support for ALS care services. Each conversation was a powerful reminder of why supporting ALS research and care is so critical.

But the moment that said it all? Mary, an ALS caregiver, and Tressa, living with ALS, started a dance party right there in the Capitol — something they do at every doctor’s appointment. It drew a crowd, earned them a gentle scolding from the Sergeant at Arms, and perfectly captured everything that makes this community extraordinary: passionate, joyful, and impossible to ignore.

Thank you to every advocate who showed up and showed out in Lansing. Even if you aren’t much of a dancer you can make a difference in your state by becoming an ALS advocate. Visit the link in our bio to learn more.

#ALS #dancing #michigan #advocating #lansing

“ALS is stupid. I did not choose this disease, but I am choosing to fight it.” - Matt Thompson, Living with ALS.

Matt is a dad, a pastor, and a musician. His youngest son is in high school, and he does not know if he will make it to his graduation. That is the reality of ALS — and no one should accept it.

Today marks the beginning of ALS Awareness Month. This is our moment to show up for every family that cannot afford to wait.

Join the fight to Accelerate the Cure for ALS. Donate today — 100% goes directly to research.

Every action, contribution, and mention moves us forward. Take action today by visiting the link in our bio!

#als #alsawarenessmonth #donate #newmusic #rockmusic

We LOVE walkers...⬇️
 
...and rollers, runners, swimmers, trotters, dancers and skippers! 
 
All are welcome at #WalktoDefeatALS!
 
#Nike #Walking #ALS #we❤️walkers

Specifically saving humanity from ALS.

But we can’t do it alone. Please donate and join us in being the hero of the story.

Visit the link in our bio to make a donation today!

#donate #ALS #Rocky #projecthailmary #signofthetimes

He thought it was arthritis. It was ALS.
 
Dave Hall first noticed weakness in his hands after a cold front and assumed he was just getting older. What he didn’t know was that he was experiencing the earliest signs of ALS.
 
ALS doesn’t always look the way people expect. Symptoms can begin in the hands or arms, the legs or feet, or even the muscles that control speech and swallowing. Some people first notice difficulty holding a pen or lifting a cup. Others experience changes in their voice before anything else.
 
Not everyone experiences the same symptoms or the same order of progression. What all people with ALS share is progressive muscle weakness over time.
 
Stories like Dave’s are exactly why funding ALS research matters. Every donation helps accelerate the cure and brings us one step closer to a world without ALS. Donate by visiting the link in our bio or at als.org/accelerate

#ALS #symptom #alsawareness #acceleratethecure #alsfact

He thought it was arthritis. It was ALS.
 
Dave Hall first noticed weakness in his hands after a cold front and assumed he was just getting older. What he didn’t know was that he was experiencing the earliest signs of ALS.
 
ALS doesn’t always look the way people expect. Symptoms can begin in the hands or arms, the legs or feet, or even the muscles that control speech and swallowing. Some people first notice difficulty holding a pen or lifting a cup. Others experience changes in their voice before anything else.
 
Not everyone experiences the same symptoms or the same order of progression. What all people with ALS share is progressive muscle weakness over time.
 
Stories like Dave’s are exactly why funding ALS research matters. Every donation helps accelerate the cure and brings us one step closer to a world without ALS. Donate by visiting the link in our bio or at als.org/accelerate

#ALS #symptom #alsawareness #acceleratethecure #alsfact

Our goal is to accelerate drug development and grow research funding so that every person living with ALS has access to promising treatments.

The ACT for ALS Reauthorization Act, led by Reps. Mike Quigley and Ken Calvert, held an important House hearing today with Morgan Griffith and Diana Degette. At a press conference following, CEO Calaneet Balas called for action:
"Today somebody is going to hear for the first time, "you have ALS" and they are going to think "Now what? What do I do? What is coming in the weeks and months ahead?" So we owe them hope."

Our goal is to accelerate drug development and grow research funding so that every person living with ALS has access to promising treatments.

The ACT for ALS Reauthorization Act, led by Reps. Mike Quigley and Ken Calvert, held an important House hearing today with Morgan Griffith and Diana Degette. At a press conference following, CEO Calaneet Balas called for action:
"Today somebody is going to hear for the first time, "you have ALS" and they are going to think "Now what? What do I do? What is coming in the weeks and months ahead?" So we owe them hope."

Our goal is to accelerate drug development and grow research funding so that every person living with ALS has access to promising treatments.

The ACT for ALS Reauthorization Act, led by Reps. Mike Quigley and Ken Calvert, held an important House hearing today with Morgan Griffith and Diana Degette. At a press conference following, CEO Calaneet Balas called for action:
"Today somebody is going to hear for the first time, "you have ALS" and they are going to think "Now what? What do I do? What is coming in the weeks and months ahead?" So we owe them hope."

My bill to reauthorize the ACT for #ALS was just considered in an Energy & Commerce hearing! I want to thank I AM ALS Founders Brian Wallach and Sandra Abrevaya for sharing their stories with Congress today. This would not have been possible without them.
 
I also want to thank @iamalsorg Board Member Dan Tate, who will be joining us at a press conference on the bill later, alongside @hmorgangriffith, @als, @mdaorg, and @youralsnetwork.

Lauren Hamilton and Chris Conte have three things in common:

1. They lost their dads to ALS.
2. They have called Boston home at one point in their lives.
3. They are running The 130th Boston Marathon Presented by Bank of America to raise awareness and funds for ALS.

How are they different? Join us this Friday at 1 p.m. ET via livestream to watch the latest episode of the ALS Matters podcast to find out!

See you there!

#ALSMatters #podcast #als #alsawareness #bostonmarathon