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heartcharged
HeartCharged
Heart Patients Advocacy Community
Prevent Cardiac Death
HCM ICD CHD Rare SCA Survivor
Gratitude
Bethany & Hannah
Wondering if he flashes the boobs?
Don’t wonder if you will!
Decide now to flash the boobs.
Every woman deserves a fairytale ending.
#FlashTheBoobs to #savealife
Stand with HeartCharged
We do not own the rights to this music.
CREDITS
Song Performed By @mvl_21.2020
Adapted Lyrics by Stephanie Keime
Cast:
Sebastian @r_a_mf
Prince Eric @theee_nickbrown_himself
Ariel @anastasiaamy414
Dancers @bethanykeime & @ebkeime
Crew:
Directed & Edited by @hannahkeime
Camera Operator @caddifilms
Dancers’ Costumes by @ebkeime
Production Designer @bethanykeime
Filmed on location @destinationdanceofoviedo
IMPLANTED DEFIBRILLATOR SHOCK OF CONSCIOUS PATIENT. Patient is 19-year-old female with severe hypertrophic cardiomyopathy (HCM). ICD implantation occurred at age 16. Previous set of two shocks administered when patient went into sudden cardiac arrest in her sleep at age 17. Event shown in real time and slow motion.
This event occurred while patient was performing in a lip-sync battle where she had attended high school. Patient reports experiencing disorientation and blurred vision consistent with episodes of elevated heart rate and syncope. However, patient did not realize she was being shocked. Instead patient thought her friend had forcibly hit into her, twice. Patient confronts friend who denies doing so. Since this was a public event, there were videos which showed friend had not made contact. Once seeing, patient realizes what must have occurred and contacts electrophysiologist who confirms. Patient describes sensation as “somebody hitting a homerun on your chest with a sledgehammer”.
Patient attends appointment with electrophysiologist the following day. AICD interrogation shows patients was shocked for what appears to be sinus rhythm to a
rate >188 bpm. (The VF detect had been turned down to 188 bpm due to ventricular tachycardia detected at a rate of 197 bpm). The dectect rate was increased to 200 bpm. Stable lead measurements. Patient was taking and tolerating metoprolol XL 75 mg daily. Dosage increased to 100 mg daily.
ICD in HCM - Who Gets It?
ICD is indicated in HCM patients at high risk for SCD, including those with:
History of SCD or sustained VT/VF
Massive LV hypertrophy (>30mm)
Unexplained syncope
Abnormal blood pressure response to exercise
Family history of SCD
An ICD shock occurs in HCM if VT/VF is detected above a programmed threshold.
The ICD may attempt ATP first before shocking.
ICD therapy is lifesaving in high-risk HCM patients for SCD prevention.
#hcmawareness #cardiacarrestsurvivor #defibrillator #ICD
There is power in a single voice.
But there is transformation in a unified one.
Today, we unveil The Solidarity Edition of AwareNow Magazine:
https://www.awarenowmedia.com/the-magazine
(See link in bio.)
This edition is a reminder that no movement rises alone. No injustice falls alone. Change has always belonged to those willing to stand together, even when standing alone would have been easier.
Featuring our cover story with Hannah and Bethany Keime, founders of HeartCharged, this issue honors the quiet and courageous decision to turn adversity into advocacy, and pain into purpose.
This is more than an edition. This is a reflection of who we are.
In this special issue, we feature moving stories from the following:
@heartcharged
@hannahkeime
@bethanykeime
@sanctuary.farms
@yourehoiness
@jeremy_david_engels
@paulrogers381
@nurse_.nic
@sonja_montiel
@myjourneywithjoel
@thedamkianna
@the_holomovement
@awarenowmedia
@shpbeds
@johnscrazysocks
@drscottmethod
@elizabeth_b_t
@sagegallon
@teambertho
@daakchithi
Helping us bring this edition to life are a number of supporters who we are grateful for. We thank @novartis (Official Ad Partner), @issuu (Official Digital Partner), @mixamprint (Official Print Partner) and @truthjusticeleague (Official Sponsor of ALIGN).
This is The Solidarity Edition.
AwareNow. More than ever.
#AwareNow #TheSolidarityEdition #HumanCause #Solidarity #BlackHistoryMonth MoreThanEver
There is power in a single voice.
But there is transformation in a unified one.
Today, we unveil The Solidarity Edition of AwareNow Magazine:
https://www.awarenowmedia.com/the-magazine
(See link in bio.)
This edition is a reminder that no movement rises alone. No injustice falls alone. Change has always belonged to those willing to stand together, even when standing alone would have been easier.
Featuring our cover story with Hannah and Bethany Keime, founders of HeartCharged, this issue honors the quiet and courageous decision to turn adversity into advocacy, and pain into purpose.
This is more than an edition. This is a reflection of who we are.
In this special issue, we feature moving stories from the following:
@heartcharged
@hannahkeime
@bethanykeime
@sanctuary.farms
@yourehoiness
@jeremy_david_engels
@paulrogers381
@nurse_.nic
@sonja_montiel
@myjourneywithjoel
@thedamkianna
@the_holomovement
@awarenowmedia
@shpbeds
@johnscrazysocks
@drscottmethod
@elizabeth_b_t
@sagegallon
@teambertho
@daakchithi
Helping us bring this edition to life are a number of supporters who we are grateful for. We thank @novartis (Official Ad Partner), @issuu (Official Digital Partner), @mixamprint (Official Print Partner) and @truthjusticeleague (Official Sponsor of ALIGN).
This is The Solidarity Edition.
AwareNow. More than ever.
#AwareNow #TheSolidarityEdition #HumanCause #Solidarity #BlackHistoryMonth MoreThanEver
There is power in a single voice.
But there is transformation in a unified one.
Today, we unveil The Solidarity Edition of AwareNow Magazine:
https://www.awarenowmedia.com/the-magazine
(See link in bio.)
This edition is a reminder that no movement rises alone. No injustice falls alone. Change has always belonged to those willing to stand together, even when standing alone would have been easier.
Featuring our cover story with Hannah and Bethany Keime, founders of HeartCharged, this issue honors the quiet and courageous decision to turn adversity into advocacy, and pain into purpose.
This is more than an edition. This is a reflection of who we are.
In this special issue, we feature moving stories from the following:
@heartcharged
@hannahkeime
@bethanykeime
@sanctuary.farms
@yourehoiness
@jeremy_david_engels
@paulrogers381
@nurse_.nic
@sonja_montiel
@myjourneywithjoel
@thedamkianna
@the_holomovement
@awarenowmedia
@shpbeds
@johnscrazysocks
@drscottmethod
@elizabeth_b_t
@sagegallon
@teambertho
@daakchithi
Helping us bring this edition to life are a number of supporters who we are grateful for. We thank @novartis (Official Ad Partner), @issuu (Official Digital Partner), @mixamprint (Official Print Partner) and @truthjusticeleague (Official Sponsor of ALIGN).
This is The Solidarity Edition.
AwareNow. More than ever.
#AwareNow #TheSolidarityEdition #HumanCause #Solidarity #BlackHistoryMonth MoreThanEver
There is power in a single voice.
But there is transformation in a unified one.
Today, we unveil The Solidarity Edition of AwareNow Magazine:
https://www.awarenowmedia.com/the-magazine
(See link in bio.)
This edition is a reminder that no movement rises alone. No injustice falls alone. Change has always belonged to those willing to stand together, even when standing alone would have been easier.
Featuring our cover story with Hannah and Bethany Keime, founders of HeartCharged, this issue honors the quiet and courageous decision to turn adversity into advocacy, and pain into purpose.
This is more than an edition. This is a reflection of who we are.
In this special issue, we feature moving stories from the following:
@heartcharged
@hannahkeime
@bethanykeime
@sanctuary.farms
@yourehoiness
@jeremy_david_engels
@paulrogers381
@nurse_.nic
@sonja_montiel
@myjourneywithjoel
@thedamkianna
@the_holomovement
@awarenowmedia
@shpbeds
@johnscrazysocks
@drscottmethod
@elizabeth_b_t
@sagegallon
@teambertho
@daakchithi
Helping us bring this edition to life are a number of supporters who we are grateful for. We thank @novartis (Official Ad Partner), @issuu (Official Digital Partner), @mixamprint (Official Print Partner) and @truthjusticeleague (Official Sponsor of ALIGN).
This is The Solidarity Edition.
AwareNow. More than ever.
#AwareNow #TheSolidarityEdition #HumanCause #Solidarity #BlackHistoryMonth MoreThanEver
There is power in a single voice.
But there is transformation in a unified one.
Today, we unveil The Solidarity Edition of AwareNow Magazine:
https://www.awarenowmedia.com/the-magazine
(See link in bio.)
This edition is a reminder that no movement rises alone. No injustice falls alone. Change has always belonged to those willing to stand together, even when standing alone would have been easier.
Featuring our cover story with Hannah and Bethany Keime, founders of HeartCharged, this issue honors the quiet and courageous decision to turn adversity into advocacy, and pain into purpose.
This is more than an edition. This is a reflection of who we are.
In this special issue, we feature moving stories from the following:
@heartcharged
@hannahkeime
@bethanykeime
@sanctuary.farms
@yourehoiness
@jeremy_david_engels
@paulrogers381
@nurse_.nic
@sonja_montiel
@myjourneywithjoel
@thedamkianna
@the_holomovement
@awarenowmedia
@shpbeds
@johnscrazysocks
@drscottmethod
@elizabeth_b_t
@sagegallon
@teambertho
@daakchithi
Helping us bring this edition to life are a number of supporters who we are grateful for. We thank @novartis (Official Ad Partner), @issuu (Official Digital Partner), @mixamprint (Official Print Partner) and @truthjusticeleague (Official Sponsor of ALIGN).
This is The Solidarity Edition.
AwareNow. More than ever.
#AwareNow #TheSolidarityEdition #HumanCause #Solidarity #BlackHistoryMonth MoreThanEver
Thought we could all use laugh at the end of this week. I love trying to get into the headspace of my heart and wonder why it acts the way it does. And when I heard this Angela audio, I realized yep with how quickly it escalates to then realizing let me chill. That feels like my heart especially when I’m on the other side experiencing a quick arrhythmia. Who else can relate?
See if you’re eligible to be part of the research that may bring a new HCM medicine to children and teens around the world. Find out if you qualify:
Link In Bio
Go To https://cedar-hcm.com/
Email medicalaffairs@cytokinetics.com
Correct care. You deserve it.
For Debora, it was a 20-year search.
At what point in treatment, do we reexamine the premise? When can we just temporarily doubt the diagnosis? In what stage, do we finally admit that perhaps we can’t solve the puzzle because the pieces just don’t fit?
Do we pile on more medications and treatments if the current ones aren’t working? Do we need more or just the right one?
Whose job is it to realize the harm that is happening from drug interactions and overmedicating?
Imagine living age 27 to 47 not being able to function properly. Imagine caring for a new baby and another child experiencing fatigue, dizziness, fluctuating heart rhythms, palpitations, shortness of breath, and uncontrolled blood pressure. Imagine after 20 years, finding out the cause of that turmoil was not being diagnosed and treated properly.
Sometimes the answer is right there but people are looking the other way.
As our HeartCharged friend and fellow Bionic Babe Debora says, advocate for yourself. Be persistent and consistent in asking questions. Share your story - to build relationships, aid in research, change policies, and save lives.
That’s what our HeartCharged Community is here to do.
Correct care. You deserve it.
For Debora, it was a 20-year search.
At what point in treatment, do we reexamine the premise? When can we just temporarily doubt the diagnosis? In what stage, do we finally admit that perhaps we can’t solve the puzzle because the pieces just don’t fit?
Do we pile on more medications and treatments if the current ones aren’t working? Do we need more or just the right one?
Whose job is it to realize the harm that is happening from drug interactions and overmedicating?
Imagine living age 27 to 47 not being able to function properly. Imagine caring for a new baby and another child experiencing fatigue, dizziness, fluctuating heart rhythms, palpitations, shortness of breath, and uncontrolled blood pressure. Imagine after 20 years, finding out the cause of that turmoil was not being diagnosed and treated properly.
Sometimes the answer is right there but people are looking the other way.
As our HeartCharged friend and fellow Bionic Babe Debora says, advocate for yourself. Be persistent and consistent in asking questions. Share your story - to build relationships, aid in research, change policies, and save lives.
That’s what our HeartCharged Community is here to do.
Correct care. You deserve it.
For Debora, it was a 20-year search.
At what point in treatment, do we reexamine the premise? When can we just temporarily doubt the diagnosis? In what stage, do we finally admit that perhaps we can’t solve the puzzle because the pieces just don’t fit?
Do we pile on more medications and treatments if the current ones aren’t working? Do we need more or just the right one?
Whose job is it to realize the harm that is happening from drug interactions and overmedicating?
Imagine living age 27 to 47 not being able to function properly. Imagine caring for a new baby and another child experiencing fatigue, dizziness, fluctuating heart rhythms, palpitations, shortness of breath, and uncontrolled blood pressure. Imagine after 20 years, finding out the cause of that turmoil was not being diagnosed and treated properly.
Sometimes the answer is right there but people are looking the other way.
As our HeartCharged friend and fellow Bionic Babe Debora says, advocate for yourself. Be persistent and consistent in asking questions. Share your story - to build relationships, aid in research, change policies, and save lives.
That’s what our HeartCharged Community is here to do.
Correct care. You deserve it.
For Debora, it was a 20-year search.
At what point in treatment, do we reexamine the premise? When can we just temporarily doubt the diagnosis? In what stage, do we finally admit that perhaps we can’t solve the puzzle because the pieces just don’t fit?
Do we pile on more medications and treatments if the current ones aren’t working? Do we need more or just the right one?
Whose job is it to realize the harm that is happening from drug interactions and overmedicating?
Imagine living age 27 to 47 not being able to function properly. Imagine caring for a new baby and another child experiencing fatigue, dizziness, fluctuating heart rhythms, palpitations, shortness of breath, and uncontrolled blood pressure. Imagine after 20 years, finding out the cause of that turmoil was not being diagnosed and treated properly.
Sometimes the answer is right there but people are looking the other way.
As our HeartCharged friend and fellow Bionic Babe Debora says, advocate for yourself. Be persistent and consistent in asking questions. Share your story - to build relationships, aid in research, change policies, and save lives.
That’s what our HeartCharged Community is here to do.
Correct care. You deserve it.
For Debora, it was a 20-year search.
At what point in treatment, do we reexamine the premise? When can we just temporarily doubt the diagnosis? In what stage, do we finally admit that perhaps we can’t solve the puzzle because the pieces just don’t fit?
Do we pile on more medications and treatments if the current ones aren’t working? Do we need more or just the right one?
Whose job is it to realize the harm that is happening from drug interactions and overmedicating?
Imagine living age 27 to 47 not being able to function properly. Imagine caring for a new baby and another child experiencing fatigue, dizziness, fluctuating heart rhythms, palpitations, shortness of breath, and uncontrolled blood pressure. Imagine after 20 years, finding out the cause of that turmoil was not being diagnosed and treated properly.
Sometimes the answer is right there but people are looking the other way.
As our HeartCharged friend and fellow Bionic Babe Debora says, advocate for yourself. Be persistent and consistent in asking questions. Share your story - to build relationships, aid in research, change policies, and save lives.
That’s what our HeartCharged Community is here to do.
ICDs remain one of the most consequential devices we implant. The margin for error is zero. So how do manufacturers ensure safety, reliability, and quality at scale?
Dr. Alan Cheng, Chief Medical Officer of Medtronic CRM, sits down with Dr. DJ Lakkireddy to discuss what goes into maintaining device integrity — from design and manufacturing through post-market surveillance.
It's a perspective clinicians rarely get direct access to, but one that matters every time you implant a device or counsel a patient after an advisory.
Watch the full conversation and join the ongoing discussion on the MedicalVisual Clinician Hub:hcp.medicalvisual.com!
#Medtronicsafety #ICD #CardiacDevices #Electrophysiology #DeviceSafety #Medtronic #Cardiology #SuddenCardiacDeath #MedicalEducation #CardioVisual #EPeeps
🫀🎨 Color M-Mode Echo Teaching Case 🔥
(Parasternal Long Axis View over the Aortic Valve)
.
At first glance, you may think this is 🌊💥 Severe Aortic Regurgitation!
📈 BUT… always check the ECG carefully:
The major turbulence here is actually SYSTOLIC not diastolic 🔍
━━━━━━━━━━━━━━━
📌 What can we appreciate here?
1️⃣ Marked systolic color flow turbulence filling the entire aortic valve box 🚨
This indicates significant LVOT/Aortic outflow obstruction
❓Now the key question:
Is this: 🟠 Valvular Aortic Stenosis? OR 🟣 Subaortic obstruction?
✅ The answer is: Subaortic obstruction
💡 Why?
Because the aortic valve opens very well and reaches maximal excursion 🚪⬆️
(as evidenced by aliasing filling the whole box with preserved normal box size)
👉 So this is NOT typical valvular AS
━━━━━━━━━━━━━━━
2️⃣ What type of subaortic obstruction? 🤔
🔹 Subaortic membrane
OR
🔹 HOCM / dynamic LVOT obstruction
✅ Both remain possible
BUT ⚠️ the presence of concomitant Aortic Regurgitation strongly favors Subaortic membrane
━━━━━━━━━━━━━━━
3️⃣ The Aortic Regurgitation 🩸
📌 Mild
📌 Eccentric
📌 Anteriorly directed
💡 Eccentric AR may suggest: 🦋 Bicuspid Aortic Valve (which was actually present in this case ✅)
━━━━━━━━━━━━━━━
4️⃣ There is also late systolic Mitral Regurgitation into the left atrium 🔄🫀
Possible explanations include:
🔹 Mitral Valve Prolapse
OR
🔹 SAM (Systolic Anterior Motion) if HOCM is present
━━━━━━━━━━━━━━━
🎯 Final Learning Pearl 💎
🚫 Don’t get deceived by the colorful image at first look!
📈 The ECG timing is the key 🔑
✅ The dominant turbulence = SYSTOLIC → LVOT/Subaortic obstruction
✅ The smaller turbulence = DIASTOLIC → Aortic Regurgitation
🫀 Echo is anatomy + hemodynamics + timing together 🎯
Source: Ahmed Mohsen (FB)
#echocardiography #cardiologia #cardiology #medicine #cardiacsurgery
A Letter to All My HeartCharged Warriors:
As I write this, my heart is heavy and there are tears in my eyes. Each of us faces different problems related to our heart yet we have a deep and abiding bond. I want to remind each and every one of you that you are loved, that you are brave, and that you are strong. I so desperately wish I could jump through the phone and give each and every one of you a heartcharged hug right now.
I know that despite our bond, I cannot truly imagine what each of you goes through on a daily basis. But I get a glimpse as you share your red days and blues days, the days you kick ass and the days life kicks yours. And I am in such awe of you.
I reflect back on days where I honestly felt like I couldn’t find the strength in myselt to tight any longer. But I had you and your examples. And I thank you all for being my strength when I couldn’t find any of my own.
I am so grateful for each and every one of you. We are truly so much stronger together. I want you to know that I am always here for you just as I feel you all are always there for me. My oversized heart and I love you all so much.
Please don’t ever give up.
❤️ B
A Letter to All My HeartCharged Warriors:
As I write this, my heart is heavy and there are tears in my eyes. Each of us faces different problems related to our heart yet we have a deep and abiding bond. I want to remind each and every one of you that you are loved, that you are brave, and that you are strong. I so desperately wish I could jump through the phone and give each and every one of you a heartcharged hug right now.
I know that despite our bond, I cannot truly imagine what each of you goes through on a daily basis. But I get a glimpse as you share your red days and blues days, the days you kick ass and the days life kicks yours. And I am in such awe of you.
I reflect back on days where I honestly felt like I couldn’t find the strength in myselt to tight any longer. But I had you and your examples. And I thank you all for being my strength when I couldn’t find any of my own.
I am so grateful for each and every one of you. We are truly so much stronger together. I want you to know that I am always here for you just as I feel you all are always there for me. My oversized heart and I love you all so much.
Please don’t ever give up.
❤️ B
A Letter to All My HeartCharged Warriors:
As I write this, my heart is heavy and there are tears in my eyes. Each of us faces different problems related to our heart yet we have a deep and abiding bond. I want to remind each and every one of you that you are loved, that you are brave, and that you are strong. I so desperately wish I could jump through the phone and give each and every one of you a heartcharged hug right now.
I know that despite our bond, I cannot truly imagine what each of you goes through on a daily basis. But I get a glimpse as you share your red days and blues days, the days you kick ass and the days life kicks yours. And I am in such awe of you.
I reflect back on days where I honestly felt like I couldn’t find the strength in myselt to tight any longer. But I had you and your examples. And I thank you all for being my strength when I couldn’t find any of my own.
I am so grateful for each and every one of you. We are truly so much stronger together. I want you to know that I am always here for you just as I feel you all are always there for me. My oversized heart and I love you all so much.
Please don’t ever give up.
❤️ B
A Letter to All My HeartCharged Warriors:
As I write this, my heart is heavy and there are tears in my eyes. Each of us faces different problems related to our heart yet we have a deep and abiding bond. I want to remind each and every one of you that you are loved, that you are brave, and that you are strong. I so desperately wish I could jump through the phone and give each and every one of you a heartcharged hug right now.
I know that despite our bond, I cannot truly imagine what each of you goes through on a daily basis. But I get a glimpse as you share your red days and blues days, the days you kick ass and the days life kicks yours. And I am in such awe of you.
I reflect back on days where I honestly felt like I couldn’t find the strength in myselt to tight any longer. But I had you and your examples. And I thank you all for being my strength when I couldn’t find any of my own.
I am so grateful for each and every one of you. We are truly so much stronger together. I want you to know that I am always here for you just as I feel you all are always there for me. My oversized heart and I love you all so much.
Please don’t ever give up.
❤️ B
The Devil Wears Prada is absolutely iconic - as is ending preventable deaths.
Please enjoy - and definitely share - these memes as reminders of what we can do in the fight to raise survival rates.
Celebrating the release of The Devil Wears Prada 2.
Of course, we watched on Opening Night, as our very own HeartCharged VP, EB Keime, was blessed to be part of the core group of actors in the Runway offices.
The Devil Wears Prada is absolutely iconic - as is ending preventable deaths.
Please enjoy - and definitely share - these memes as reminders of what we can do in the fight to raise survival rates.
Celebrating the release of The Devil Wears Prada 2.
Of course, we watched on Opening Night, as our very own HeartCharged VP, EB Keime, was blessed to be part of the core group of actors in the Runway offices.
The Devil Wears Prada is absolutely iconic - as is ending preventable deaths.
Please enjoy - and definitely share - these memes as reminders of what we can do in the fight to raise survival rates.
Celebrating the release of The Devil Wears Prada 2.
Of course, we watched on Opening Night, as our very own HeartCharged VP, EB Keime, was blessed to be part of the core group of actors in the Runway offices.
The Devil Wears Prada is absolutely iconic - as is ending preventable deaths.
Please enjoy - and definitely share - these memes as reminders of what we can do in the fight to raise survival rates.
Celebrating the release of The Devil Wears Prada 2.
Of course, we watched on Opening Night, as our very own HeartCharged VP, EB Keime, was blessed to be part of the core group of actors in the Runway offices.
The Devil Wears Prada is absolutely iconic - as is ending preventable deaths.
Please enjoy - and definitely share - these memes as reminders of what we can do in the fight to raise survival rates.
Celebrating the release of The Devil Wears Prada 2.
Of course, we watched on Opening Night, as our very own HeartCharged VP, EB Keime, was blessed to be part of the core group of actors in the Runway offices.
The Devil Wears Prada is absolutely iconic - as is ending preventable deaths.
Please enjoy - and definitely share - these memes as reminders of what we can do in the fight to raise survival rates.
Celebrating the release of The Devil Wears Prada 2.
Of course, we watched on Opening Night, as our very own HeartCharged VP, EB Keime, was blessed to be part of the core group of actors in the Runway offices.
The Devil Wears Prada is absolutely iconic - as is ending preventable deaths.
Please enjoy - and definitely share - these memes as reminders of what we can do in the fight to raise survival rates.
Celebrating the release of The Devil Wears Prada 2.
Of course, we watched on Opening Night, as our very own HeartCharged VP, EB Keime, was blessed to be part of the core group of actors in the Runway offices.
HeartCharged is supporting an independent, non-interventional research study being conducted by Global Perspectives, an IQVIA business, to better understand the experiences of women living with cardiovascular disease.
The study involves a 90-minute online focus group discussion with other women in the United States who also have cardiovascular disease. Participants will receive an honorarium of $150 USD for completing the focus group and an additional $25 USD for providing confirmation documentation (for example: a physician note, copy of a health record or patient portal screenshot, lab results, or a prescription or medication photo).
Researchers are currently looking to speak with women in the United States who meet at least one of the following criteria (confirmation documentation required):
• Women diagnosed with cardiomyopathy within the last 5 years
• Women diagnosed with high LDL-C (“bad” cholesterol) or elevated lipoprotein(a) (Lp(a) within the last 5 years, with a history of ASCVD and a cardiac event in the last 5 years (for example: heart attack / myocardial infarction, unstable angina, or ischemic stroke)
Please note that no medical treatment is provided as part of this study. Participation is voluntary, and all research is anonymous. No questions will be asked that could identify you personally, and all data will be treated confidentially and analysed in aggregate form.
If you express interest in participating, eligibility will be validated either via a brief phone call (approximately 10 minutes) and/or a short online eligibility survey. This validation step is not remunerated, but is required to confirm eligibility before participation.
If you would like more information or think you may qualify, please email:
bryan.pownall@iqvia.com
🫀 Every time I run a cardiac arrest, there’s a short list in my head—and hypertrophic cardiomyopathy is always on it.
This new data from JAMA Network Open adds important nuance. In ~6000 patients with newly diagnosed HCM, the 10-year risk of out-of-hospital cardiac arrest was higher than controls (~3–4% vs ~1.5–3%)… but still in the low single digits.
👉🏾To me, this feels less like a ticking time bomb
…and more like a chronic, smoldering risk.
🚨 What actually stands out? Heart failure.
• Not subtle
• Not borderline
• ~3x higher risk of OHCA
When these patients decompensate, their risk profile changes—and that matches what we see clinically.
Also worth noting:
Risk increases with age at diagnosis, with older patients carrying the highest burden.
📊 Why this study is strong
• Nationwide cohort (6.4 million people)
• 20+ years of follow-up
• Near-complete OHCA capture
• Incident HCM + matched controls
• Multiple sensitivity analyses
👉🏾 This is real-world, population-level data at scale
⚠️ But important limitations
• HCM defined by ICD codes (no echo, MRI, genotype)
• No phenotype-level risk stratification
• Only resuscitated arrests included → likely underestimates true SCD
• Cause of arrest not confirmed
• Danish system → may not generalize everywhere
💡 My takeaway as an EM physician
Most HCM patients will not arrest
…but HCM + heart failure = different conversation
That’s the patient I worry about
That’s when I start thinking about
👉🏾SCD prevention, not just symptom control
Share your thought below 💭👇🏾
📚 Reference
Dinesen RB, Rajan D, Torp-Pedersen C, et al. Hypertrophic cardiomyopathy and risk of out-of-hospital cardiac arrest. JAMA Network Open. 2026;9(4):e269673. doi:10.1001/jamanetworkopen.2026.9673
🫀 Every time I run a cardiac arrest, there’s a short list in my head—and hypertrophic cardiomyopathy is always on it.
This new data from JAMA Network Open adds important nuance. In ~6000 patients with newly diagnosed HCM, the 10-year risk of out-of-hospital cardiac arrest was higher than controls (~3–4% vs ~1.5–3%)… but still in the low single digits.
👉🏾To me, this feels less like a ticking time bomb
…and more like a chronic, smoldering risk.
🚨 What actually stands out? Heart failure.
• Not subtle
• Not borderline
• ~3x higher risk of OHCA
When these patients decompensate, their risk profile changes—and that matches what we see clinically.
Also worth noting:
Risk increases with age at diagnosis, with older patients carrying the highest burden.
📊 Why this study is strong
• Nationwide cohort (6.4 million people)
• 20+ years of follow-up
• Near-complete OHCA capture
• Incident HCM + matched controls
• Multiple sensitivity analyses
👉🏾 This is real-world, population-level data at scale
⚠️ But important limitations
• HCM defined by ICD codes (no echo, MRI, genotype)
• No phenotype-level risk stratification
• Only resuscitated arrests included → likely underestimates true SCD
• Cause of arrest not confirmed
• Danish system → may not generalize everywhere
💡 My takeaway as an EM physician
Most HCM patients will not arrest
…but HCM + heart failure = different conversation
That’s the patient I worry about
That’s when I start thinking about
👉🏾SCD prevention, not just symptom control
Share your thought below 💭👇🏾
📚 Reference
Dinesen RB, Rajan D, Torp-Pedersen C, et al. Hypertrophic cardiomyopathy and risk of out-of-hospital cardiac arrest. JAMA Network Open. 2026;9(4):e269673. doi:10.1001/jamanetworkopen.2026.9673
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